Proclamation for CDKL5 Awareness Month (June 2023)

Whereas CDKL5 Canada is a registered charitable corporation founded to pursue research into finding a cure for CDKL5 disorder; and

Whereas CDKL5 Deficiency Disorder is a rare genetic mutation that prevents the body from making essential proteins needed for brain development, causing children to have seizures as well as have issues achieving basic motor, vision, and other basic developmental milestones; and

Whereas CDKL5 Canada is looking to raise public awareness of this disorder, and provide support and information to all who deal with the hardships of this disorder; and

Whereas June is known as CDKL5 Awareness Month; and

Whereas local resident Jakob Ruest passed away from this devastating disorder when he was just three years old and his family has created an awareness campaign in his memory;

Therefore Be It Resolved That I, Lisa McGee, Mayor, do hereby proclaim June 2023 as “CDKL5 Awareness Month” in the Town of Arnprior and encourage all citizens to participate in the CDKL5 Canada online event, and learn more about this rare disorder, which affects people in our community.